The Mountains We Climb

Episode 8 with Jacob Haendel: survivor of locked-in syndrome, and the only documented case of recovery from stage 4 progressive leukoencephalopthy


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He was referred to as a 'vegetable'.

Jacob Haendel, a talented 28-year-old chef from the affluent suburbs of Boston, developed stage 4 toxic acute progressive leukoencephalopathy (TAPL) from smoking heroin. TAPL is a fatal disease that damages your brain's white matter - cells that make a substance called myelin. This protects your nerves and losing it can make it harder for you to move, think, and feel sensations. Within a month he could no longer walk. Within 4 months he could no longer eat. Within seven months, he was locked-in: a comatose state you are conscious through. He is the only documented case to recover from this disease and is here to share his experiences.

You can find Jacob's Youtube channel which has his contact info (in the about section) and the videos documenting his recovery (that he makes himself) here: https://www.youtube.com/channel/UCpoJxQNKSybRuSXEEuQ0cNA

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The Mountains We ClimbBy Jordan Kilpatrick-Smith