The White Noise Podcast

Episode #9 Patient Centered View of Narcolepsy

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In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy. 

 

SHOW NOTES

  1. Introduction of Guest: (5:00)
  2. Matt’s Best Advice (11:00)
  3. Matt’s Role in the sleep community (12:40)
  4. Matt’s symptoms onset (15:00)
  5. Matt’s additional symptoms (19:00)
  6. Matt’s onset of cataplexy (23:00)
  7. Cataplexy triggers (24:45)
  8. Delayed diagnosis: (27:00)
  9. Nightmares and sleep paralysis onset (31:30)
  10. One more question about sleep paralysis (34:15)
  11. Partial cataplexy (37:50)
  12. Diagnosis and Management: (39:00)
  13. Pitolisant (43:45)
  14. Strategic Napping (44:15)
  15. Bitter Pills (45:15)
  16. AASM revised Guidelines (47:22)
  17. Sodium Oxybate and Cataplexy (49:00)
  18. Finding a sleep physician to manage narcolepsy (55:00)
  19. Sleep apnea (60:30)
  20. MSLT (62:15)
  21. Treat Clinically (65:00)
  22. 4 pillars of management (66:00)
  23. Patient request/feedback (68:00)
  24. Academic vs private practice (71:30)

    25.  

     

    Links to articles and guidelines referenced in this episode are included 

    Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.

    Treatment of central disorders of hypersomnolence: an American Academy of Sleep Medicine clinical practice guideline

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