An orphan disease is a rare disease or condition that affects fewer than 200,000 people in the United States.  Oftentimes, due to the rarity of these diseases and the lack of a large patient population, finding support and resources for treatment options is a challenge. Receiving a diagnosis of one of these rare diseases can leave an individual or family with a very isolated and lonely feeling. In this episode, Lisa Lovasco talks about how their family navigated her daughter Aria's FEVR diagnosis. The story of the Lovasco family, like many others starts with feelings of loneliness and despair.  However, perseverance lead to finding community, support groups and advocacy initiatives that instilled hope for their journey.