<p>A piece I wrote for Rare Disease Awareness Day. What's the ask? What's at stake? </p>

A piece I wrote for Rare Disease Awareness Day. What's the ask? What's at stake?

Every Day Is Rare Disease Awareness Day

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.

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Every Day Is Rare Disease Awareness Day

Every Day Is Rare Disease Awareness Day