In this episode of Talking Head Pain, Joe Coe is joined by Kelly Gavigan Lorant, Director of Data Management and Analytics at GHLF, as they explore the findings from a recent patient-centered survey on migraine. Kelly also explains how GHLF's research registry, originally focused on rheumatic and musculoskeletal conditions, has expanded to include a broader spectrum of chronic diseases, including migraine. Discover the insights gained about migraine patients, their treatment paths, and how these can intersect with other chronic conditions. This episode provides a unique look into the evolving understanding and management of migraine within the chronic illness community.

Among the highlights in this episode:

01:46: Kelly explains her position at GHLF and her work with various teams

02:49: “Our research registry is a place for people to engage in research and provide information about themselves, about their condition, about their disease activity, and disease journey. And all that information contributes to research,” says Kelly

03:02: Originally focused on rheumatic and musculoskeletal conditions, GHLF’s research registry, formerly known as ArthritisPower, has now become PatientSpot, and has expanded to encompass a wider range of chronic diseases, including migraine. This expansion will allow GHLF to gather a more comprehensive understanding of how chronic conditions intersect and affect individuals

04:26: Kelly discusses the response rate of the survey and the intent to start migraine research within GHLF’s research registry, PatientSpot

05:27: Kelly discusses the types of health care providers seen by survey respondents (migraine patients) and highlights the lack of care a significant portion of the respondents received for  their migraine attacks

06:39: Kelly shares more on the medications used by the survey participants, including over-the-counter medications and ice therapy

08:20: Joe and Kelly discuss potential future patient-centered research questions, exploring the intersection between chronic conditions like rheumatoid arthritis and migraine

09:17: Joe discusses the new initiative “PatientSpot” and its inclusive approach for patients with various chronic diseases, inviting research questions and participation

You can send your questions to Joe Coe at [email protected]

For more information, visit https://patientspot.org/ or download the PatientSpot app from your app store

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

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