“It’s like you go from planning the end of your life to planning the rest of your life,” said Shantee Anaquod, who has been lying in her hospital bed for more than a month suffering from an extremely rare life-threatening disease called atypical hemolytic uremic syndrome (aHUS).  She finally got the drug and is now back to school and doing better.

Yesterday, Jillian Lanthier joined us on the program and explained what happened when her son was denied the drug for the third time.  So are we tackling the expensive drug issue properly?

Guest: Jennifer Anaquod

Guest: UBC public health expert Steve Morgan