SCN2A Insights

Exploring Families' Needs


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Families can find it challenging dealing with the healthcare system when children with genetic epilepsy and developmental epileptic encephalopathies are unwell. To help identify needs and plan towards improving services, Genetic Epilepsy Team Australia convened a roundtable including families, clinicians and researchers. In this episode Kris Pierce discusses the outcomes of the roundtable and plans for the future.

Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.

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Links

  • Genetic Epilepsy Team Australia
  • Genetic Epilepsy Clinics - podcast episode

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SCN2A InsightsBy SCN2A Australia

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