Rare Disease Connection

Fabry Disease


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Hear from the experts in our conversations on a rare genetic disease: Fabry Disease.  We cover Fabry disease diagnosis, new treatment options, and how to connect with the Fabry community. 

Experts in this episode include: 

*Jessica Bucher, a board-certified genetic counselor and graduate of Northwestern University

*Dr. Jaime Barea, he is a clinical geneticist at the University of California-San Diego.

*Lut de Baere.  She is the President of the Fabry International Network and gave us a deeper look at their organization, which supports patients diagnosed with Fabry disease with events, resources, updated information and much more.

More resources and information for you: raredisease.com/fabry

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Rare Disease ConnectionBy Aspect Health Inc