Retina UK

Families Conference 5 - 7 May 2017

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Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017.

  • Welcome & Introduction 
  • Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster 
  • What can an alliance of patients and professionals achieve – Prof Graeme Black
  • Medical Q & A
  • The current clinic experience for families – Rob Henderson
  • The Genetic Eye Clinic experience – Theo Gale
  • Life beyond diagnosis – Laura Ross
  • How families cope and provide the right support for their children – Bo Anderson
  • Q & A
  • Translating Science into Medicine – Dr Mariya Moosajee
  • Science Q & A
  • A Family Story – Chloe Joyner & Bhavini Makwana
  • Pathway to support for education – Wendy Sainsbury
  • The Appreciative Enquiry Session (part 1)
  • The Appreciative Enquiry Session (part 2)
  • The Appreciative Enquiry Session (part 3)
  • The Appreciative Enquiry Session (part 4)
  • The Appreciative Enquiry Session (part 5)
  • The Appreciative Enquiry Session (part 6)
    • ...more
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