In this episode Sarita talks with Beverly Jacobson about balancing family, faith, and a Trisomy 18 diagnosis. To learn more about Beverly's new nonprofit, Verity's Village, find them on Facebook and Instagram. 

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Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment">https://anchor.fm/beingrare/support</a>

In this episode Sarita talks with Beverly Jacobson about balancing family, faith, and a Trisomy 18 diagnosis. To learn more about Beverly's new nonprofit, Verity's Village, find them on Facebook and Instagram. --- Send in a voice message: https://anchor.fm/beingrare/message Support this podcast: https://anchor.fm/beingrare/support

In this episode Sarita talks with Beverly Jacobson about balancing family, faith, and a Trisomy 18 diagnosis. To learn more about Beverly's new nonprofit, Verity's Village, find them on Facebook and Instagram. 

--- 

Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="noopener noreferrer">https://anchor.fm/beingrare/support</a>

Family, Faith, & Trisomy 18

Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. 

Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Family, Faith, & Trisomy 18

Family, Faith, & Trisomy 18

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