In this episode of Rare AF: Advocacy & Facts, In this episode, Stormy Rogers shares her powerful journey as a woman living with hemophilia—one that went unrecognized and untreated for decades. From severe bleeding, miscarriages, and dismissal by providers to finally being diagnosed and becoming a fierce advocate. Her story sheds light on the challenges of being labeled “just a carrier,” the physical and emotional toll of misdiagnosis, and the fight to be heard, believed, and properly treated. Through resilience and advocacy, Stormy has transformed her experience into a mission to support others—founding a nonprofit, building community, and amplifying the voices of women living with bleeding disorders and rare diseases.

To learn more about Stormy’s work and support her mission, visit www.waveofsupport.org   

Watch and listen to new episodes of RareAF every month and follow us on Social Media for all the best moments from the show: https://linktr.ee/RareAFpodcast

The views expressed in this podcast are those of the individual speakers and guests and do not necessarily reflect the views of Heritage Specialty Pharmacy or any affiliated entities. This podcast is provided for informational and educational purposes only and is not intended to provide medical, legal, or other professional advice, nor to replace the guidance of a qualified healthcare professional. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition, treatment, or health‑related decision. 

Guests or speakers who share personal experiences are sharing their own perspectives only. Individual experiences and outcomes may vary, and listeners should not rely on anecdotal information when making medical or healthcare decisions. 

This podcast may include discussion of specific therapies, products, brands, companies, or treatment approaches. Such discussion is provided for general awareness only and does not constitute endorsement, recommendation, or affiliation by Heritage Specialty Pharmacy. Any references to products or services offered by Heritage Specialty Pharmacy are for informational purposes only and are not intended as an advertisement or solicitation. Trademarks and brand names mentioned are the property of their respective owners. 

All content is current as of the date of recording and may be subject to change.