Firefly Chat

Firefly Chat Episode 7 (Part 2): NPC Moms React to Adrabetadex News


Listen Later

A continuation of Firefly Fund co-founder Pam Andrews' discussion with NPC moms, highlighting the benefits of Adrabetadex. The moms share their fears about a future without the medication, the popular topic of risk vs. benefit to administer the medication, as well as thoughts about adding additional therapies to treat NPC children and give them the best chance to live healthy lives.
...more
View all episodesView all episodes
Download on the App Store

Firefly ChatBy Firefly Fund

  • 5
  • 5
  • 5
  • 5
  • 5

5

1 ratings