Cara O’Neill, chief scientific officer of Cure Sanfilippo Foundation, discusses Sanfilippo syndrome, her journey from physician to advocate, and her efforts to craft a research agenda.

Forging a Rare Disease Research Agenda

<p>RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy. </p>

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

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Forging a Rare Disease Research Agenda

Forging a Rare Disease Research Agenda