Why is personalized medicine still so difficult for patients to navigate in practice?

In this episode, Perry is joined by patient advocate and Multiple Myeloma Research Foundation co-founder Kathy Giusti for a candid conversation that brings the patient's journey into sharp focus. Drawing from her experience as both a multiple myeloma and breast cancer survivor, Kathy shares what personalized medicine looks like from the patient side—complex, fast-moving, and often overwhelming without the right support systems in place.

In this episode, you’ll hear about:

• Why personalized medicine goes far beyond a diagnosis—and requires deeper understanding through genomic sequencing, biomarker testing, and immune profiling
• The challenges patients face at diagnosis, including limited time with physicians and information overload
• How patients can better prepare for doctor visits and advocate for the testing and care they need
• The critical (and often underutilized) role of patient advocacy groups and navigators
• Why caregivers play such an important role in decision-making and support
• The gaps in care coordination—and how fragmented systems create friction for patients
• Why diagnostic innovation isn’t always visible to patients—and how that impacts awareness and access
• The importance of collaboration across providers, researchers, payers, and innovators
• How Kathy built the Multiple Myeloma Research Foundation into a “doer” organization driving real change in research and care
• The need for continuous testing and monitoring throughout the entire patient journey—not just at diagnosis
• How shared decision-making is reshaping the relationship between patients and providers

The conversation closes with a forward-looking perspective on the future of personalized medicine—where prevention, earlier intervention, and more integrated care models could dramatically improve outcomes and reduce the burden on patients.

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