When Dalila Sabaredzovic’s sons were diagnosed with an ultra-rare genetic condition, she faced more questions than answers. But through resilience, advocacy, and the power of collaboration, her family's story has become a beacon of hope in rare disease research. In this deeply moving episode of Sounds of Science, Dalila shares her journey from despair to discovery—and how a global village of scientists came together to pursue a personalized treatment that could change everything.

Show Notes

• Taking a Customized and Collaborative Approach to Therapeutic Development
• Drug Discovery Services | Charles River
• ASO Screening Services | Charles River
• Rare Disease Research for Drug Development | Charles River
• Two in Eight Billion | Eureka blog