All Alone With Something to Say

From The Deep: Life with ME/CFS


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This episode focuses on one woman's experience with ME-CFS: Tally Shea. Tally joins the podcast to detail her experience with ME/CFS and discuss the larger stories we can uncover that we tell ourselves around chronic illness, and thus about what it means to be good, to be productive, to be well. and to be a part of everyday life.

  1. To donate to Allison Williams' 2025 NYC TCS Marathon Fundraising Page with NORD (ME/CFS):

https://donate.rarediseases.org/fundraiser/6293246

  1. To find out more about ME/CFS, please consider the following resources:

https://www.meartistsproject.com/

https://www.decodeme.org.uk/

  1. For sources mentioned in the episode:

https://www.cdc.gov/me-cfs/about/fast-facts-about-me-cfs.html#:~:text=Who's%20affected,in%20U.S.%20have%20ME/CFS.

https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490

https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

https://pmc.ncbi.nlm.nih.gov/articles/PMC11126284/

  1. For the newest developments in ME/CFS research:

https://www.decodeme.org.uk/initial-dna-results/

  1. To see more of Charlie Dov Schön's work, see: https://charliedovschon.com or @charliedovart on instagram!

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All Alone With Something to SayBy Emma Newbery

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