“My genetic counselling was a very positive experience and one which I really recommend. It was undertaken in a specialist multidisciplinary genetic clinic and was combined with taking blood samples for genetic testing on the day.

“The counselling was informative, thorough and sensitively carried out and covered both myself and my wider family which confirmed the “type” of RP we have. With the huge advances in genetic understanding being made in the medical sector, I believe that counselling will play a significant role in furthering potential treatments.”