In this sequel first episode, Kareem joins Sarita to talk about being rare, how their journey started, and why they started the E.WE Foundation. 

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Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment">https://anchor.fm/beingrare/support</a>

In this sequel first episode, Kareem joins Sarita to talk about being rare, how their journey started, and why they started the E.WE Foundation. --- Send in a voice message: https://anchor.fm/beingrare/message Support this podcast: https://anchor.fm/beingrare/support

In this sequel first episode, Kareem joins Sarita to talk about being rare, how their journey started, and why they started the E.WE Foundation. 

--- 

Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="noopener noreferrer">https://anchor.fm/beingrare/support</a>

Get To Know Us

Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. 

Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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