My rare disease

Having a sister with a rare disease - Lucy Baker


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This episode features a very special guest, my sister! Lucy is 22 years old, she’s a trainee Lawyer and we love spending time together when we can. In this episode, Lucy and I speak openly about what she thinks about my rare disease, Scimitar Syndrome, what it's like having a sister with an illness there is so little information on and some of the memorable experiences that stand out for her. It has been really interesting listening to how a rare disease can affect the whole family, not just the person with the condition and how Scimitar Syndrome has had an impact on her life.
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My rare diseaseBy Katy Baker

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