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Health Research Together
By AbSPORU Patient Engagement Team with Hosts Sandra Munro & Ambar Ortega PintoScienceMedicineHealth & Fitness
Health Research Together episodes
- APERSU Patient Engagement Network
In this episode, we’re joined by 4 team members of the APERSU Patient Engagement Network. They're here today to share their views and experiences about Patient Reported Outcome Measures, or PROMS for short.
Guests:
Gloria Wilkinson who is a retired registered nurse with over 25 years of experience volunteering in Alberta’s health system. She continues to stay actively engaged through ongoing learning, including training with Patient and Community Engagement Research. Living in a retirement community, Gloria brings a unique perspective shaped by daily connection with people of diverse abilities, keeping her closely attuned to the evolving needs of patients and caregivers.
D’Arcy Duquette, who is a dedicated patient advocate and cancer survivor who brings lived experience and leadership to improving health systems across Alberta. He serves on numerous advisory committees and networks, contributing to initiatives in patient engagement, emergency care, and quality improvement. D’Arcy’s work has been recognized with the Queen Elizabeth II Platinum Jubilee Medal for his contributions to community and healthcare advocacy.
Simron Sidhu, who is a passionate advocate for inclusive, people-centred health care shaped by personal experiences as a caregiver supporting chronic health issues. He has expertise in community engagement and collaborative problem solving, which helps ensure local perspectives guide health programs and decision-making.
Simron has served on the Imagine Citizens Network, championing culturally responsive mental health supports, advocating for immigrant health equity and incorporating these perspectives into policy solutions.
Allison Soprovich, who brings a nursing background and a deep commitment to patient-centred care. As an End-Users Lead for APERSU, she works across sectors and communities to bridge research and practice, with a passion for ensuring patient perspectives and the data they share, translate into meaningful improvements in health care.
Together, they’ve been co-designing tools like a patient-friendly PROMs tip sheet and contributing to presentations, panels, and research planning efforts. Their work highlights how partnership and co-creation can make PROMs more relevant, accessible, and impactful.
49 min - Strengthening Health Systems Through Indigenous Research with Kienan Williams (EP 27)
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1 hr 15 min - 21 min
- 21 min
- 33 min
- Creating Safe Spaces for Storytellers with PEP Talks (Engaging in Storytelling Part 3)
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37 min - 31 min
- The Patient Story Experience: Cost or Benefit from SPORcast (Engaging in Storytelling Part 1)
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43 min - Organizations and Patient Stories from Matters of Engagement (Engaging in Storytelling Part 2)
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55 min - The Value of Experiential Knowledge in Patient-Oriented Research with Nicolas Fernandez (EP 10)
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39 min
About Health Research Together
From the publisher's feed
Welcome to Health Research Together, the Patient Engagement Podcast brought to you by the Alberta Strategy for Patient-Oriented Research SUPPORT UNIT (AbSPORU) Patient Engagement…
Team.
Join us for insightful conversations featuring a diverse array of voices, including patient, family, and community research partners, academic researchers, healthcare providers, policy-makers, and other key collaborators on the topic of partnerships in patient-oriented research and patient engagement in health research and health care! Together, we explore innovative ideas, share experiences, and highlight the importance of collaboration in health research.
Join us for insightful conversations featuring a diverse array of voices, including patient, family, and community research partners, academic researchers, healthcare providers, policy-makers, and other key collaborators on the topic of partnerships in patient-oriented research and patient engagement in health research and health care! Together, we explore innovative ideas, share experiences, and highlight the importance of collaboration in health research.