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In Part 3 of this series, I open up about what day-to-day life looks like with Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) — the heart condition that most people have never even heard of. I talk about the lifestyle changes, the emotional toll, and the moments where it really hits me that this isn’t just a diagnosis — it’s part of who I am now.
It’s honest. It’s heavy. But it’s also real life. Whether you have CPVT, know someone who does, or you’re just curious what it’s like living with a rare condition, this episode gives you a real glimpse into what I carry — physically and emotionally — every single day.
By Drew and Peg ShustekSend us a text
In Part 3 of this series, I open up about what day-to-day life looks like with Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) — the heart condition that most people have never even heard of. I talk about the lifestyle changes, the emotional toll, and the moments where it really hits me that this isn’t just a diagnosis — it’s part of who I am now.
It’s honest. It’s heavy. But it’s also real life. Whether you have CPVT, know someone who does, or you’re just curious what it’s like living with a rare condition, this episode gives you a real glimpse into what I carry — physically and emotionally — every single day.