About IBD

Help for Parents With Crohn’s Disease or Ulcerative Colitis


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How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn’s and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.

1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project

Concepts and ideas discussed in this episode:

  • Resources From the Crohn’s and Colitis Foundation:
    • Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
    • Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
    • Just Like Me: http://justlikemeibd.org
    • Quiz My IBD: http://www.ibdskillsquiz.org
    • Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
    • Crohn’s & Colitis Community: https://www.crohnscolitiscommunity.org/
  • The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/

Find Dr Rajeev Jain at:

  • Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
  • Twitter: https://twitter.com/rajster

Find IBD Moms at:

  • Facebook: https://www.facebook.com/IBDMoms/
  • Twitter: https://twitter.com/ibdmoms
  • Instagram: https://www.instagram.com/ibdmoms/
...more
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About IBDBy Amber J Tresca

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