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Her Son Was Born with a Rare Genetic Disorder
In an uplifting yet heart-wrenching episode of 'The Day Before It Happened,' host Rachel Rose welcomes Lindsay Jones, whose son's life was marked by a rare genetic disorder, X-Linked Myotubular Myopathy.
Lindsay's story is one of profound love, growth, and the unexpected joys of motherhood. Her candid recount of the controversial clinical trial that promised hope yet ended in tragedy will move you deeply.
Join us as we explore the strength that comes from adversity and the beauty found in life's most challenging moments.
#RareGeneticDisorder #Motherhood #Inspiration #myotublarmyopathy
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Listen on Spotify and Apple Podcasts
Spotify: https://open.spotify.com/show/3LANL2oGyVqKkh4TM15Vuk
Apple Podcasts: https://podcasts.apple.com/us/podcast/the-day-before-it-happened/id1715045836
Follow on social media for more content related to the stories you’ve heard here:
Website: https://www.thedaybeforeithappened.com
Facebook: https://www.facebook.com/thedaybeforeithappened
Instagram: https://www.instagram.com/daybeforeithappened
If you have a trauma story you’d like to share with the world please email [email protected]
We weren’t meant to face this incredibly hard life alone. You’re doing the best you can with the tools and resources you have. Don’t give up. If you are struggling and need immediate help:
https://988lifeline.org
View all episodes
By Rachel RoseIn an uplifting yet heart-wrenching episode of 'The Day Before It Happened,' host Rachel Rose welcomes Lindsay Jones, whose son's life was marked by a rare genetic disorder, X-Linked Myotubular Myopathy.
Lindsay's story is one of profound love, growth, and the unexpected joys of motherhood. Her candid recount of the controversial clinical trial that promised hope yet ended in tragedy will move you deeply.
Join us as we explore the strength that comes from adversity and the beauty found in life's most challenging moments.
#RareGeneticDisorder #Motherhood #Inspiration #myotublarmyopathy
------------------------------------------------------------
Listen on Spotify and Apple Podcasts
Spotify: https://open.spotify.com/show/3LANL2oGyVqKkh4TM15Vuk
Apple Podcasts: https://podcasts.apple.com/us/podcast/the-day-before-it-happened/id1715045836
Follow on social media for more content related to the stories you’ve heard here:
Website: https://www.thedaybeforeithappened.com
Facebook: https://www.facebook.com/thedaybeforeithappened
Instagram: https://www.instagram.com/daybeforeithappened
If you have a trauma story you’d like to share with the world please email [email protected]
We weren’t meant to face this incredibly hard life alone. You’re doing the best you can with the tools and resources you have. Don’t give up. If you are struggling and need immediate help:
https://988lifeline.org