For Serena, a TGCT diagnosis came with more questions than answers. Diagnosed with TGCT and undergoing surgery just 1 year ago, she shares what it has been like navigating the unexpected challenges of recovery and finding her way back to strength and balance.

As a patient from Germany, Serena opens up about her experience with TGCT, the physical and emotional realities of recovery, and the patience it takes to rebuild confidence in your body after surgery. Her story is a reminder that healing isn’t always a straight line and that progress can look different than we expect.

Amy, a patient with diffuse hip TGCT, shares her experience navigating surgery and unexpectedly waking up with a hip replacement. As a young patient in her 20s, she faced difficult decisions about treatment and joint replacement while also thinking about growing her family. Now, with her daughter by her side, Amy reflects on how TGCT and her treatment journey continue to impact her life, mobility, and family.

TGCT is a family journey. In this episode, Kelly and her husband Joe pull back the curtain on life with TGCT of the knee. From diagnosis to treatment and everything in between, they share what it's really like to navigate the disease together, offering candid stories, practical advice, and plenty of inspiration for patients, caregivers, and loved ones alike.

Vance knows firsthand what it means to face TGCT and keep moving forward. Living with diffuse TGCT in his knee, he has become a powerful advocate for himself. In this podcast, he shares his journey, hard-earned wisdom, and practical advice for navigating diagnosis, treatment decisions, and life with TGCT. His story is a reminder that while TGCT can be challenging, patients are stronger than they know.

Camille is a patient living with diffuse TGCT of the knee who has found the power behind her voice. In this episode, Camille shares his personal journey navigating her healthcare and mental health. She speaks about the importance of self advocacy, representation of all patients, and counseling and therapy played a role in her acceptance and journey. Camille’s story offers encouragement to others facing similar obstacles and reminding listeners that finding your voice can make a meaningful difference in your journey.

What does managing TGCT treatment really look like day to day? In this episode, Dr. Dale Shepard, MD, PhD, medical oncologist at Cleveland Clinic, shares practical insights into monitoring and managing side effects during systemic therapy for TGCT. From laboratory blood testing to symptom management strategies, Dr. Shepard explains how he guides patients through treatment while helping them stay informed, prepared, and supported along the way.

Join Dr. Dale Shepard, MD, PhD, medical oncologist at Cleveland Clinic, for an insightful and approachable conversation on navigating systemic therapies for TGCT. In this episode, Dr. Shepard breaks down how he helps patients set realistic expectations around treatment outcomes, side effects, and fertility considerations while empowering them to make informed decisions about their care. Whether you’re a patient, caregiver, or clinician, this episode offers practical guidance and compassionate perspective on the TGCT treatment journey.

Amber, a UK patient living with diffuse TGCT of the knee, shares her powerful journey from brushing off early symptoms to becoming a fierce advocate for her own care. In this episode, she opens up about the turning points that pushed her to seek answers, challenge assumptions, and take control of her treatment, offering an honest, inspiring look at what it means to find your voice as a patient.

Des is a patient living with diffuse TGCT of the knee who was originally from Singapore before relocating to the United Kingdom. In this episode, Des shares his personal journey navigating two very different healthcare systems and reflects on the lessons he learned along the way. He speaks candidly about the challenges of living with a rare disease, the importance of persistence, representation of all patients, and how self-advocacy became a powerful tool in shaping his care. Des’s story offers encouragement to others facing similar obstacles and reminding listeners that finding your voice can make a meaningful difference in your journey.

Meet Kelsey, a TGCT warrior from Canada who’s keeping it real about life with a localized TGCT of the knee diagnosis that didn’t go quite as expected. In this episode, she opens up about the shock of diagnosis, the anxiety that followed, and what it’s like when recovery takes longer than expected.

Kelsey also shares the practical (and honest!) ways she navigated the ups and downs, including her go-to tips for protecting your mental health during recovery.

Whether you’re newly diagnosed or somewhere along the journey, this episode is a mix of real talk, reassurance, and helpful takeaways you won’t want to miss.