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Holding Space: How a Lupus Diagnosis Transformed Our Family Dynamics
"I was scared to even touch her." đź’”
What happens to a family when a vibrant child suddenly falls into a coma? On this week’s episode of Lupus Has No Face, Savannah is joined by her cousin, Katrona Burks, for an unfiltered look at Holding Space.
Katrona reveals the heartbreaking reality of being a child witness to the "scare" of Lupus and how the fear of doing something wrong kept her at the hospital door. Now a nurse and MDS coordinator, she shares how that trauma fueled her passion for patient care and why she had to unlearn everything she thought she knew about support.
Inside the Episode:
✨ The "Invisible" Battle: Why pain doesn't have a look.
✨ Professional Insights: What exactly does an MDS Coordinator do?
✨ Healing Family Gaps: Moving past the "time missed" during illness.
Chapter Timestamps
00:00 – Introduction: Lupus Has No Face
02:30 – Meet Princess: Life Beyond the Diagnosis
04:15 – Growing Up in Milwaukee & The Foster Care System
10:20 – The Shocking Discovery: Diagnosed with SLE in the ER
14:45 – Medical Advocacy: Fighting for Second Opinions and Correct Labs
20:10 – The Impact of Sickle Cell Trait and Anemia
24:35 – Daily Life: Managing Pain, Fainting Spells, and Motherhood
30:00 – Educating the Tribe: Teaching Kids and Friends about Lupus
36:50 – Healing Through Faith: Gospel Music and Meditation
42:15 – Advice for the Younger Self and Final Encouragement
If you are a caregiver, family member, or friend supporting a lupus warrior, this episode is a must-listen. Please tune in to hear KatrĹŤna's candid story and share it with someone.
https://savannahburks.com/health-and-wellness-coaching
https://savannahburks.com/
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Tune in to be inspired, empowered, and reminded that your story matters. ✨
Resource Links
What happens to a family when a vibrant child suddenly falls into a coma? On this week’s episode of Lupus Has No Face, Savannah is joined by her cousin, Katrona Burks, for an unfiltered look at Holding Space.
Katrona reveals the heartbreaking reality of being a child witness to the "scare" of Lupus and how the fear of doing something wrong kept her at the hospital door. Now a nurse and MDS coordinator, she shares how that trauma fueled her passion for patient care and why she had to unlearn everything she thought she knew about support.
Inside the Episode:
✨ The "Invisible" Battle: Why pain doesn't have a look.
✨ Professional Insights: What exactly does an MDS Coordinator do?
✨ Healing Family Gaps: Moving past the "time missed" during illness.
Chapter Timestamps
00:00 – Introduction: Lupus Has No Face
02:30 – Meet Princess: Life Beyond the Diagnosis
04:15 – Growing Up in Milwaukee & The Foster Care System
10:20 – The Shocking Discovery: Diagnosed with SLE in the ER
14:45 – Medical Advocacy: Fighting for Second Opinions and Correct Labs
20:10 – The Impact of Sickle Cell Trait and Anemia
24:35 – Daily Life: Managing Pain, Fainting Spells, and Motherhood
30:00 – Educating the Tribe: Teaching Kids and Friends about Lupus
36:50 – Healing Through Faith: Gospel Music and Meditation
42:15 – Advice for the Younger Self and Final Encouragement
If you are a caregiver, family member, or friend supporting a lupus warrior, this episode is a must-listen. Please tune in to hear KatrĹŤna's candid story and share it with someone.
https://savannahburks.com/health-and-wellness-coaching
https://savannahburks.com/
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Tune in to be inspired, empowered, and reminded that your story matters. ✨
Resource Links
- Official Website: www.lupushasnoface.com
- Savannah Burks Brand: www.SavannahBurks.com
- @LHNF on Social<
View all episodes
By Savannah Burks | Lupus Advocate & Host"I was scared to even touch her." đź’”
What happens to a family when a vibrant child suddenly falls into a coma? On this week’s episode of Lupus Has No Face, Savannah is joined by her cousin, Katrona Burks, for an unfiltered look at Holding Space.
Katrona reveals the heartbreaking reality of being a child witness to the "scare" of Lupus and how the fear of doing something wrong kept her at the hospital door. Now a nurse and MDS coordinator, she shares how that trauma fueled her passion for patient care and why she had to unlearn everything she thought she knew about support.
Inside the Episode:
✨ The "Invisible" Battle: Why pain doesn't have a look.
✨ Professional Insights: What exactly does an MDS Coordinator do?
✨ Healing Family Gaps: Moving past the "time missed" during illness.
Chapter Timestamps
00:00 – Introduction: Lupus Has No Face
02:30 – Meet Princess: Life Beyond the Diagnosis
04:15 – Growing Up in Milwaukee & The Foster Care System
10:20 – The Shocking Discovery: Diagnosed with SLE in the ER
14:45 – Medical Advocacy: Fighting for Second Opinions and Correct Labs
20:10 – The Impact of Sickle Cell Trait and Anemia
24:35 – Daily Life: Managing Pain, Fainting Spells, and Motherhood
30:00 – Educating the Tribe: Teaching Kids and Friends about Lupus
36:50 – Healing Through Faith: Gospel Music and Meditation
42:15 – Advice for the Younger Self and Final Encouragement
If you are a caregiver, family member, or friend supporting a lupus warrior, this episode is a must-listen. Please tune in to hear KatrĹŤna's candid story and share it with someone.
https://savannahburks.com/health-and-wellness-coaching
https://savannahburks.com/
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Tune in to be inspired, empowered, and reminded that your story matters. ✨
Resource Links
What happens to a family when a vibrant child suddenly falls into a coma? On this week’s episode of Lupus Has No Face, Savannah is joined by her cousin, Katrona Burks, for an unfiltered look at Holding Space.
Katrona reveals the heartbreaking reality of being a child witness to the "scare" of Lupus and how the fear of doing something wrong kept her at the hospital door. Now a nurse and MDS coordinator, she shares how that trauma fueled her passion for patient care and why she had to unlearn everything she thought she knew about support.
Inside the Episode:
✨ The "Invisible" Battle: Why pain doesn't have a look.
✨ Professional Insights: What exactly does an MDS Coordinator do?
✨ Healing Family Gaps: Moving past the "time missed" during illness.
Chapter Timestamps
00:00 – Introduction: Lupus Has No Face
02:30 – Meet Princess: Life Beyond the Diagnosis
04:15 – Growing Up in Milwaukee & The Foster Care System
10:20 – The Shocking Discovery: Diagnosed with SLE in the ER
14:45 – Medical Advocacy: Fighting for Second Opinions and Correct Labs
20:10 – The Impact of Sickle Cell Trait and Anemia
24:35 – Daily Life: Managing Pain, Fainting Spells, and Motherhood
30:00 – Educating the Tribe: Teaching Kids and Friends about Lupus
36:50 – Healing Through Faith: Gospel Music and Meditation
42:15 – Advice for the Younger Self and Final Encouragement
If you are a caregiver, family member, or friend supporting a lupus warrior, this episode is a must-listen. Please tune in to hear KatrĹŤna's candid story and share it with someone.
https://savannahburks.com/health-and-wellness-coaching
https://savannahburks.com/
Thank you for tuning in to "Lupus Has No Face," a podcast dedicated to sharing real stories and insights on living with Lupus and other invisible illnesses. Tune in to be inspired, empowered, and reminded that your story matters. ✨
Resource Links
- Official Website: www.lupushasnoface.com
- Savannah Burks Brand: www.SavannahBurks.com
- @LHNF on Social<