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How a Painful Sun-Related Condition Sparked a Purpose and a Calling | Craig Leppert
In this informative interview, Kerri Fitzgerald talks with Craig Leppert, founder of Shadow Jumpers, who lives with a rare painful sun-related condition called erythropoietic protoporphyria (EPP). The genetic condition is marked by an intense reaction to sunlight and other lights, challenging this Los Angeles-based founder to live purposefully while remaining mindful of sun and light exposure.
Throughout this we highlight:
• How Craig Leppert and his family finally received a diagnosis of erythropoietic protoporphyria and how they handled the news.
• Learn about how Craig and his family came to navigate life with EPP.
• How Craig founded Shadow Jumpers to provide important resources to the photosensitive condition community.
• Be inspired by Craig’s camp for kids with photosensitive conditions that allows them to safely participate in activities like horseback riding, archery, and more.
Connect with Craig Leppert and Shadow Jumpers:
https://www.instagram.com/shadowjumpers_
https://www.facebook.com/ShadowJumpersINC
https://www.linkedin.com/company/shadow-jumpers/
Website: https://www.shadowjumpers.org/
At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.
Support My Hero 360:
https://www.instagram.com/myhero.360/
https://www.tiktok.com/@myhero.360
https://www.myhero360-links.com
Watch this on YouTube: https://www.youtube.com/watch?v=3KZm8Tz7lag&t=55s
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By My Hero 360In this informative interview, Kerri Fitzgerald talks with Craig Leppert, founder of Shadow Jumpers, who lives with a rare painful sun-related condition called erythropoietic protoporphyria (EPP). The genetic condition is marked by an intense reaction to sunlight and other lights, challenging this Los Angeles-based founder to live purposefully while remaining mindful of sun and light exposure.
Throughout this we highlight:
• How Craig Leppert and his family finally received a diagnosis of erythropoietic protoporphyria and how they handled the news.
• Learn about how Craig and his family came to navigate life with EPP.
• How Craig founded Shadow Jumpers to provide important resources to the photosensitive condition community.
• Be inspired by Craig’s camp for kids with photosensitive conditions that allows them to safely participate in activities like horseback riding, archery, and more.
Connect with Craig Leppert and Shadow Jumpers:
https://www.instagram.com/shadowjumpers_
https://www.facebook.com/ShadowJumpersINC
https://www.linkedin.com/company/shadow-jumpers/
Website: https://www.shadowjumpers.org/
At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.
Support My Hero 360:
https://www.instagram.com/myhero.360/
https://www.tiktok.com/@myhero.360
https://www.myhero360-links.com
Watch this on YouTube: https://www.youtube.com/watch?v=3KZm8Tz7lag&t=55s