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How patient stories are changing PCOS research
Kendall Soucie, an associate professor at the University of Windsor, has spoken with many people suffering with polycystic ovarian syndrome. She explains that in Canada, it can take anywhere from 5 to 15 years for a diagnosis. She tells us why studying the lived experiences of people with PCOS is an integral part to the research of this poorly-understood condition. Nam Kiwanuka speaks with Kendall about her hopes and how her own lived experience with it informs her work.
Got a question or comment? Email us at: [email protected]
If you, or someone you know, is struggling with mental health, visit any of the following resources for support: Canada.ca/mental-health
Kids Help Phone Call 1-800-668-6868 (toll-free) or text CONNECT to 686868.
The Government of Ontario's Mental Health Support Resources: https://www.ontario.ca/page/find-mental-health-support
Follow TVO on social: https://www.youtube.com/theagenda
https://www.instagram.com/mistreatedtvo
Join our newsletter: https://www.tvo.org/newsletters
Visit the TVO Today website for current affairs journalism, documentaries and podcasts: https://www.tvo.org
Research links
Canadian PCOS Resource List: https://www.healuwindsor.com/copy-of-canadian-pcos-resources
Monash University: PCOS Guideline and Resources - Monash Centre for Health Research and Implementation (MCHRI)
PCOS Challenge: PCOS Challenge: The National Polycystic Ovary Syndrome Association
The Season's collective (Ontario-specific): The Seasons Collective | Thriving with PCOS
PCOS together: (Alberta): Home - PCOS.Together
H.E.A.L Lab: https://www.healuwindsor.com
Name change for ‘outdated’ PCOS term backed by majority of health professionals, patients: https://www.healio.com/news/womens-health-ob-gyn/20250606/name-change-for-outdated-pcos-term-backed-by-majority-of-health-professionals-patients
The under-researched and often misunderstood disorder that affects 1 in 8 women: https://www.independent.co.uk/life-style/health-and-families/pcos-symptoms-name-change-meaning-b2759872.html
The Diagnostic Experiences of Women With Polycystic Ovary Syndrome (PCOS) in Ontario, Canada: https://pubmed.ncbi.nlm.nih.gov/33213256/
“It Wasn’t Until I Took the Reins and Said….” Power and Advocacy in Canadian Women’s Narratives of Polycystic Ovary Syndrome Diagnosis and Treatment: https://www.tandfonline.com/doi/full/10.1080/23293691.2022.2054671
See omnystudio.com/listener for privacy information.
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By TVOKendall Soucie, an associate professor at the University of Windsor, has spoken with many people suffering with polycystic ovarian syndrome. She explains that in Canada, it can take anywhere from 5 to 15 years for a diagnosis. She tells us why studying the lived experiences of people with PCOS is an integral part to the research of this poorly-understood condition. Nam Kiwanuka speaks with Kendall about her hopes and how her own lived experience with it informs her work.
Got a question or comment? Email us at: [email protected]
If you, or someone you know, is struggling with mental health, visit any of the following resources for support: Canada.ca/mental-health
Kids Help Phone Call 1-800-668-6868 (toll-free) or text CONNECT to 686868.
The Government of Ontario's Mental Health Support Resources: https://www.ontario.ca/page/find-mental-health-support
Follow TVO on social: https://www.youtube.com/theagenda
https://www.instagram.com/mistreatedtvo
Join our newsletter: https://www.tvo.org/newsletters
Visit the TVO Today website for current affairs journalism, documentaries and podcasts: https://www.tvo.org
Research links
Canadian PCOS Resource List: https://www.healuwindsor.com/copy-of-canadian-pcos-resources
Monash University: PCOS Guideline and Resources - Monash Centre for Health Research and Implementation (MCHRI)
PCOS Challenge: PCOS Challenge: The National Polycystic Ovary Syndrome Association
The Season's collective (Ontario-specific): The Seasons Collective | Thriving with PCOS
PCOS together: (Alberta): Home - PCOS.Together
H.E.A.L Lab: https://www.healuwindsor.com
Name change for ‘outdated’ PCOS term backed by majority of health professionals, patients: https://www.healio.com/news/womens-health-ob-gyn/20250606/name-change-for-outdated-pcos-term-backed-by-majority-of-health-professionals-patients
The under-researched and often misunderstood disorder that affects 1 in 8 women: https://www.independent.co.uk/life-style/health-and-families/pcos-symptoms-name-change-meaning-b2759872.html
The Diagnostic Experiences of Women With Polycystic Ovary Syndrome (PCOS) in Ontario, Canada: https://pubmed.ncbi.nlm.nih.gov/33213256/
“It Wasn’t Until I Took the Reins and Said….” Power and Advocacy in Canadian Women’s Narratives of Polycystic Ovary Syndrome Diagnosis and Treatment: https://www.tandfonline.com/doi/full/10.1080/23293691.2022.2054671
See omnystudio.com/listener for privacy information.