The Rare hour with Christopher Velona

How social media helps awareness with Megan Loden


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Megan is changing how rare disease families interact. With the help of social media, Megan's spin on the day-to-day lives of rare diseases has us laughing a bit more. You can see in her Instagram reels as she tells the truth through deadpan humor. 

You will like this creator for sure on today's show!


Megan is a mom to twins — identical 18-year-old girls — and a 14-year-

old son. She, her husband, and her kids live just outside of Phoenix. She is

a writer, caregiver, and mom. Maybe most importantly, Megan is also

an advocate for rare diseases and rare disease caregiving. She feeds

her soul with her career and works at ANGEL AID CARES uplifting

other caregivers. She is currently the chair of the Arizona Angioma

Community Alliance and treasurer of the HOD Association in her “free”

time. Follow her on Facebook, or Instagram, or check out her website!

meganloden.com

Facebook:

https://www.facebook.com/megan.loden.5?ref=bookmarks

Instagram:

https://www.instagram.com/megan.loden/

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The Rare hour with Christopher VelonaBy Christopher Velona

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