We explore how to become a self-learner in hemophilia, from adherence and refills to evaluating factor, non-factor, and gene therapies. Jorge shares candid lessons on transition to adulthood, community support, and choosing treatments that fit real life.

• Why ownership of care decisions matters
• Adherence as daily practice and mindset
• Planning refills and emergency doses with pharmacy
• Signals it may be time to review medication
• Comparing standard, extended, non-factor and gene therapy
• Using lifestyle fit as a decision lens
• Learning at chapter and national events
• Guidance and hope for newly diagnosed families
• Building a comprehensive support network

Be part of the conversation at Emerging Therapies, February 24–25. Register now at hopeforhemophilia.org/emerging-therapies

Support the show