Live the Width of Your Life

How to Find Hope, Acceptance, and Extraordinary Celebration: A Heartfelt Conversation with Becky Tilley


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📘Join me for my conversation this week with Becky Tilley—a wonderful mom, author, and advocate for celebrating our differences. Becky candidly shares her personal journey with Koolen-de Vries syndrome, a rare condition impacting both her and her children. Despite the challenges, Becky's resilience shines as she reveals how she found strength, uplifting others through her writing and speaking engagements. 🌟👩‍👧‍👦

Explore Becky's incredible story, including insights from her book 'Thrive Rare, Embracing the Uniqueness Within.' Delve into her mission supporting individuals with rare disorders, and gain beautiful perspectives on self-acceptance, living life to the fullest, and her dreams for the future. 🌈


Episode Highlights:

  • Becky’s 18-month journey of tests leading to a tri-genome blood test, providing a conclusive diagnosis and hope, signaling faster diagnostic methods.
  • How Becky's son's diagnosis unveiled her own syndrome, passing it to her unborn child, creating a unique triple diagnosis, and intertwining their family's health story.
  • Witness how Becky’s diagnosis transformed into her power, igniting inspiration as she boldly embraced her uniqueness, turning it into a remarkable force for positivity.


Join us as we explore Becky Tilley's mission to embrace differences, viewing them as opportunities for learning and growth, fostering a world where everyone's strengths and weaknesses are valued. 🌈


Show notes: https://akuzmagroup.com/podcast/findhopeandacceptance


If you like today’s podcast, please like, subscribe, write a review, share it with others, and please tune in as I have real conversations with my guests on how they’re living the width of their lives.


Thank you!



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Live the Width of Your LifeBy Aneta Ardelian Kuzma