
Sign up to save your podcasts
Or


Send a text
A blizzard rolled in the same weekend my lungs gave out (again), and suddenly everything we rely on—power, cell phone reception, hospital routines, even the simple act of getting a meal—buckled. We found ourselves riding the fault line between fear and farce: oxygen levels plunging into the 70s, a CT hunt for answers, and a hospitalist who showed up with a high-pitched certainty and brand-new boat shoes. If you’ve ever felt like a passenger in your own care, you’ll recognize the uneasy mix of tests, contradictions, and the quiet calculation it takes to keep your nerve.
While I tried to breathe, our house went dark. Michael huddled under blankets with the dogs, reading by flashlight while branches cracked outside. Inside the hospital, generators cut us to half power, red outlets glowed like lifeboats, and surgeries stopped cold. The kitchen jammed, the phones rang unanswered, and “non-select” trays landed with a thud—banana, peaches in syrup, and a full-sugar shake for a diabetic. I pushed back, asked for the right insulin, and learned once again that advocacy isn’t rude; it’s survival. Somewhere between the beeping of an alarmed bed and a 4 a.m. dosage debate, a night tech with a brilliant headwrap sang gospel, and the room lifted. Care is clinical; healing is human.
There’s gallows humor too. The PureWick promised dignity and delivered a soaked bed; the fix was plastic sheeting and a no-nonsense diaper that actually worked. Barb, the PCA with the sandpaper voice, narrated the night with Christmas lines and practical grace. We closed with music: Jacob Moon’s layered craft, why tribute shows keep selling out, and why twenty-somethings are lining up for Sinatra. We also held space for loss—names that hurt to say out loud—and a soft goodbye to Neil Sedaka, whose songs thread through our family history.
Press play for a story that moves from oxygen crashes to small mercies, from system failures to the people who keep them running. If this resonates, follow the show, share it with a friend who needs a laugh-while-you-cope listen, and leave a review to help others find us. Your voice helps keep this one breathing.
Find our Facebook group: https://www.facebook.com/groups/447251562357065/
By Anne Levine and Michael Hill-Levine5
1111 ratings
Send a text
A blizzard rolled in the same weekend my lungs gave out (again), and suddenly everything we rely on—power, cell phone reception, hospital routines, even the simple act of getting a meal—buckled. We found ourselves riding the fault line between fear and farce: oxygen levels plunging into the 70s, a CT hunt for answers, and a hospitalist who showed up with a high-pitched certainty and brand-new boat shoes. If you’ve ever felt like a passenger in your own care, you’ll recognize the uneasy mix of tests, contradictions, and the quiet calculation it takes to keep your nerve.
While I tried to breathe, our house went dark. Michael huddled under blankets with the dogs, reading by flashlight while branches cracked outside. Inside the hospital, generators cut us to half power, red outlets glowed like lifeboats, and surgeries stopped cold. The kitchen jammed, the phones rang unanswered, and “non-select” trays landed with a thud—banana, peaches in syrup, and a full-sugar shake for a diabetic. I pushed back, asked for the right insulin, and learned once again that advocacy isn’t rude; it’s survival. Somewhere between the beeping of an alarmed bed and a 4 a.m. dosage debate, a night tech with a brilliant headwrap sang gospel, and the room lifted. Care is clinical; healing is human.
There’s gallows humor too. The PureWick promised dignity and delivered a soaked bed; the fix was plastic sheeting and a no-nonsense diaper that actually worked. Barb, the PCA with the sandpaper voice, narrated the night with Christmas lines and practical grace. We closed with music: Jacob Moon’s layered craft, why tribute shows keep selling out, and why twenty-somethings are lining up for Sinatra. We also held space for loss—names that hurt to say out loud—and a soft goodbye to Neil Sedaka, whose songs thread through our family history.
Press play for a story that moves from oxygen crashes to small mercies, from system failures to the people who keep them running. If this resonates, follow the show, share it with a friend who needs a laugh-while-you-cope listen, and leave a review to help others find us. Your voice helps keep this one breathing.
Find our Facebook group: https://www.facebook.com/groups/447251562357065/

58,448 Listeners

12,873 Listeners

12,829 Listeners