Trisomy Family Stories

In Conversation With Ann-Marie


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In this episode, we hear from Ann-Marie who received a diagnosis of Full Trisomy 18 at 20 weeks pregnant; news that would change the course of her pregnancy and her expectations overnight.


She speaks candidly about carrying her son  Aangsuke  with both uncertainty and fierce love, and what it was like when he defied expectations and survived birth. What followed was a new challenge: advocating for him within a medical system that did not always assume intervention was appropriate.


With courage and determination, she shares her experience of fighting for certain surgeries and care decisions, navigating complex conversations with professionals while holding onto hope for her child.


This is a story not only of diagnosis and difficulty, but of joy, resilience and the profound love that drives a parent to stand firm for their child. It is an honest reflection on what advocacy looks like when the future is unclear and on the unexpected moments of hope that can unfold along the way.

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Trisomy Family StoriesBy SOFT UK