Trisomy Family Stories

In Conversation With Niamh


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In this episode, we are honoured to be joined by Niamh Lynch, who shares the story of her beloved son, Cillian.

At just 12 weeks pregnant, Niamh was told that Cillian had Trisomy 13, a diagnosis that would change everything. In this deeply moving conversation, Niamh speaks with honesty and grace about the months that followed: the shock, the fear, the love, and the impossible decisions no parent ever expects to face.

Niamh reflects on carrying Cillian, bonding with him, and learning how to hold space for both hope and heartbreak at the same time. She also shares how reaching out to SOFT UK became a source of comfort, connecting her with other families who truly understood what she was facing, and reminding her that she was not alone on this path.

Through speaking with parents who had walked similar journeys, Niamh found reassurance, strength and a sense of belonging during an otherwise isolating time. Her story is not only about loss, but about love, connection and the quiet power of being heard.

This episode is a tribute to Cillian’s life and to the enduring strength of a mother’s love. It offers comfort and solidarity to families walking similar paths, and invites listeners to sit with a story that deserves time, care and compassion.'

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Trisomy Family StoriesBy SOFT UK