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Mina and Mark Stendardo from The Storm The Heavens Fund join THE LOFT to share their story and spread awareness for their daughter Philomena who passed away from the rare and deadly disease called Diffuse intrinsic pontine glioma (DIPG) - an aggressive type of childhood cancer that forms in the brainstem. They also talk about the mural made by talented artist Jordan Spector in dedication to Philomena as well as the inspiration behind it. Their movement has generated over 1 million dollars in research and continues to motivate, inspire, and save lives every single day.
Mina and Mark Stendardo from The Storm The Heavens Fund join THE LOFT to share their story and spread awareness for their daughter Philomena who passed away from the rare and deadly disease called Diffuse intrinsic pontine glioma (DIPG) - an aggressive type of childhood cancer that forms in the brainstem. They also talk about the mural made by talented artist Jordan Spector in dedication to Philomena as well as the inspiration behind it. Their movement has generated over 1 million dollars in research and continues to motivate, inspire, and save lives every single day.