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When Beth Vanstone’s daughter Madi was diagnosed with cystic fibrosis as a baby, she was thrust into a world of uncertainty, medical complexity, and urgent decisions. In this powerful episode of Bradford Banter, Beth shares how her family’s personal journey led to a national fight for access to life-saving treatments—not just for Madi, but for thousands of Canadians living with rare diseases.

We talk about the barriers families face in our healthcare system, the years-long battle to get vital drugs approved and publicly funded, and the toll it takes when time is not on your side. Beth also opens up about what keeps her going, what still needs to change, and why no family should ever have to fight this hard to access care.

This is an eye-opening, deeply human conversation about resilience, reform, and the power of a mother’s voice.

Links to learn more:

Cystic Fibrosis Canada

Provincial Action Group

Email for Beth Vanstone: [email protected] 

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