Sometimes we come across people in our lives who we find incredibly inspiring, who persevere through significant difficulty for a greater cause. When it comes to our children, as parents we can be sometimes unstoppable. This is the case with Bo Bigelow, who exemplifies someone walking a courageous path through his advocacy for his daughter, tirelessly seeking answers on the rare disease that has rendered her non-verbal, and also in through political activism that is having a direct impact in our country today. I hope you enjoy this inspiring conversation with Bo.
Bo Bigelow is a father, writer, attorney, and rare-disease advocate. He and his wife made national news when they used social media to find a diagnosis for the genetic disorder his daughter faces. Those same efforts led him to a researcher who is now investigating the disorder. Bo hosts the podcast “Stronger Every Day” (http://www.portlandrootsmedia.com/and has written a book of the same name. He co-founded Disorder: The Rare Disease Film Festival, slated for October 2017 in Boston. He lives in Falmouth with his wife and two children. Learn more about Bo's life and work at facebook.com/bigelowbooks.
I hope you enjoyed this interview. To learn more about me, Rachel Horton White, and my work as an intuitive counselor with individuals and in groups, please visit www.soulfulworkconsulting.com