Trigger warning: Some of the discussion in this episode may be a trigger for some people. Please call Lifeline on 13 11 14 if you need to talk.

Today we talk with Marie Dagenais-Lewis. Marie is a TV director, journalist, public speaker and chronic illness advocate. She grew up with MHE (Multiple Hereditary Exostosis) and lives with Hemiplegic Migraine and Ehlers-Danlos Syndrome. Join us as Marie talks candidly about what it was like growing up with MHE, why communications and media can be such an optimal career and powerful advocacy tool for the disabled, and just what her scary hemiplegic migraine symptoms are and can be. Marie also talks about her safe social network for chronic illness - the R.A.R.E. Community, and her artwork (which she also uses as a form of advocacy).

R.A.R.E. Community
www.rareadvocatesrepresentingeveryone.com

Instgram
https://www.instagram.com/r.a.r.e.advoc8/

Facebook
https://www.facebook.com/R.A.R.E.Advoc8

Threadless (for art)
www.rarebymariedl.threadless.com

Music by Lyndon Wesley
www.lyndonwesley.com

Support the show (https://www.facebook.com/MigraineXalone/)