Let’s talk about epilepsy

Introduction to: Harder to Manage Epilepsy

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In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication.

Around 1 in 3 young people with epilepsy continue to have seizures despite treatment. These epilepsies are often described as harder to manage or drug‑resistant and can come with additional challenges, including difficulties with learning, development, behaviour and everyday family life.

This series is about shining a light on those experiences, challenging misconceptions, and sharing clear, trustworthy information and support.

NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice.

Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

🗣️ Meet our guests:

  • Lara Carr, Head of Research at Young Epilepsy – Host
  • Professor Helen Cross, The Prince of Wales’s Chair of Childhood Epilepsy and Head of the Developmental Neuroscience Programme at UCL–Great Ormond Street Institute of Child Health Honorary Consultant in Paediatric Neurology, Great Ormond Street Hospital Young Epilepsy
  • Lindsay, Mum to Jess, who has lived with epilepsy since early childhood, sharing an honest parent perspective on diagnosis, treatment journeys and family life.

    • 💜 Why this series matters

    If you’re living with harder to manage epilepsy – or supporting someone who is – it can feel isolating and overwhelming. This series aims to help you:

    • Understand that epilepsy looks different for everyone
    • Feel less alone, more informed and more hopeful
    • Know where to find trusted support and information

      • 📍 Support and further information If you or someone you care for is affected by harder to manage epilepsy, help is available:

      • Young Epilepsy website: https://www.youngepilepsy.org.uk/
      • Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy
      • Support for parents and carers: https://www.youngepilepsy.org.uk/parents-and-carers
      • Support and inclusion services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion 

        • 📢 Follow Young Epilepsy:

        • Facebook: http://facebook.com/YoungEpilepsy
        • Instagram: https://www.instagram.com/youngepilepsy/
        • YouTube: https://www.youtube.com/user/youngepilepsy
        • LinkedIn: https://www.linkedin.com/company/young-epilepsy/
        • TikTok: https://www.tiktok.com/@youngepilepsy 

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          Let’s talk about epilepsyBy Young Epilepsy