In this episode of Ounces in Miracles, we sit down with Jennifer, a NICU mom whose son Jaxson was born with a rare genetic condition called 22Q13 duplication.

Jennifer opens up about her pregnancy, Jaxson’s NICU journey, the challenges of navigating a rare diagnosis, and the many specialists and therapies that have supported him along the way. She also shares the lessons she’s learned as an advocate and what she wishes more people understood about raising a child with unique medical needs.

This episode covers:

• Jennifer’s pregnancy and Jaxson’s birth story

• Navigating the NICU and finding moments of hope

• Understanding 22Q13 duplication in parent-friendly terms

• Life after the NICU: therapies, specialists, and milestones

• Advocacy, resilience, and support for families with rare diagnoses

💜 Jennifer’s story is a powerful reminder that while the NICU journey is never easy, families don’t have to walk it alone.

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