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Journeys through pulmonary fibrosis
Journeys through pulmonary fibrosis episodes
- When Scleroderma Affects the Lungs: Why it’s Important to Act Early.In this episode of ‘Journeys Through Pulmonary Fibrosis’, host Ilaria Galetti is joined by Ruth Ajayi, who is living with systemic sclerosis, and a rheumatologist Dr Cosimo Bruni, to explore the impact of this rare autoimmune condition on lung health. Together, they discuss the often complex and emotional path to diagnosis, the challenge of navigating care across multiple medical specialties, and the realities of adapting to life with a chronic disease. Through both personal and clinical perspectives, the conversation highlights the importance of early detection in managing progressive lung scarring, and how a strong partnership between patients and healthcare professionals can help individuals navigate change and find a new sense of normal.41 min
- How Collaboration Can Address Unmet Needs
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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22 min - The unquestioned support of patient organizationsThe importance of connecting with the wider pulmonary fibrosis community.
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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30 min - How to strive in life againHow to stay positive despite the challenges pulmonary fibrosis presents.
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
More information
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38 min - Reality of living with RA-ILDLiz shares her heartfelt journey of living with rheumatoid arthritis along with interstitial lung disease
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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23 min - Innovating today for patients of tomorrowHow innovation today could have a positive impact on those diagnosed with pulmonary fibrosis.
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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15 min - RelationshipsHow does pulmonary fibrosis impact relationships, and how can we limit this impact?
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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21 min - Shared decision makingHow shared decision making can draw on wide expertise and support people living with pulmonary fibrosis
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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22 min - Multidisciplinary teams and the importance of communicationHow multidisciplinary teams can help improve the care of people with pulmonary fibrosis
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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20 min - Diet and nutritionChallenges and solutions in managing diet and nutrition in people with pulmonary fibrosis
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, pulmonary fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through pulmonary fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. As we travel through their patient journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
More information
Terms of Use
19 min
About Journeys through pulmonary fibrosis
From the publisher's feed
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to…
build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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