Lejla

Troy and Stephanie are parents to their ultra-rare CHAMP1ION, Jett. Jett was the 74th diagnosed person in the world with CHAMP1 in 2020. This monthly podcast aims to bring light to this genetic disease, while sharing stories, experiences and updates regarding research efforts within our community. Grab a coffee and stick around. We’re so happy you’re here!

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Lejla

Lejla