The Spoonie Struggle

Let's Talk Ehlers Danlos Syndrome


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Episode 4: Let's Talk Ehlers Danlos Syndrome

In this episode, we discuss all things Ehlers Danlos Syndrome. EDS is a group of usually inherited connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Symptoms vary, but can include widespread joint and muscle pain, walking difficulty, dislocations and subluxations, poor wound healing, problems with the GI system, heart, dysautonomia, headaches, mouth symptoms, sleep, and much much much more. Diagnosis is tough but is sometimes made via genetic testing or clinical symptoms. Treatment varies depending on the symptoms and the clinical manifestations.

Links:

EDS Helpline EDS Videos Community Resources Loose Connections Magazine Facebook Group EDS Virtual Support EDS Diagnostic Checklist

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Hosted by: Jessica Temple

Music by Antarcticbreeze Music

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment.

Copyright 2021 Jessica Temple

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The Spoonie StruggleBy Jessica Temple