Starting a new day with ME/CFS, with full awareness of the suffering that lies ahead and the helplessness of a reality with no effective treatments, no suport from the world around you, and no concrete knowledge of a cure; This is one of the most profound acts of courage...

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This is ME/CFS. Unrelenting. Unforgiving. Never ending. You fight and fight for crumbs of life that most muggles throw away. Crumbs that are not even good enough for the dogs. And then ME/CFS launches a new assault and you are back in the trench you were in years ago. No mercy. No solace. A forever war that keeps taking and taking and taking…

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Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate…

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I often say this to healthy muggles:  Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things…

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I want to announce my new Print Store! 

I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life. I want to share these images and possibly prints of these images with all of you! ❤️

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Memories tearing like tissue paper,
Of all the dreams,
I thought might be made real,
Tearing into pieces so small,
They float away,
Into the forever night of ME/CFS…

✏️ My ME/CFS Blog

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I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new change that I feel comfortable telling you all. And I want to tell you because I want you to hear this story!

✏️ My ME/CFS Blog

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Will you take the 2025 ME/CFS Valentine’s Day Challenge and reach out to 2 people you love and tell them you love them and why? …You will make their day. And if we all do this, it will have a ripple effect and reach through the ME/CFS community and none of us will feel alone or unloved today.

✏️ My ME/CFS Blog

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Psssst! Hey fingernails!
Didn’t you get the memo? What are you doing growing so fast like that, not to mention those perfect cuticles! We are in total body shut down mode here, you’re not supposed to be doing anything right.

[Trigger Warning: This post is a joke]

✏️ My ME/CFS Blog

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My bloodwork never matches how I feel. Treatments don't work or make me worse. I am constantly dumping energy into seeking new treatments that likely won't work. This system has failed us...

✏️ My ME/CFS Blog

❓What is ME/CFS?

👤 My Story

📄 ME/CFS Resources

🙏 Donate to ME/CFS Research

🖼️ My Print Store