Today I am speaking to  Nthabeleng Ramoeli. She is the founder of the Rare Diseases Lesotho Association (RDLA) and she is living with a rare disease called Ehlers-Danlos Syndrome (EDS) which is a connective tissue disorder. She explains the challenges she has faced from living with a rare disease, to self-diagnosing and having to educate her doctors. She has lived an extraordinary life but has grown spiritually because of it. She gives us awesome insights on gratitude and acceptance.

If you have questions for me please email [email protected] and if you would like to contact Nthabeleng please visit her social media pages for (1) RARE Diseases Lesotho Associations | Facebook..