#013.  How a normal hearing  child of deaf adults serves children with hearing loss and develops a better model for their communication and educational needs!

In addition to serving as owner and lead consultant for Carter Hears! in Fort Mill, South Carolina, an educational consulting group that focuses on children with hearing loss by supporting schools, professionals, and families with customized services. Mariann Carter has developed an unique model for optimizing education for children with hearing loss.  The Quill Model.

The Quill Model aims to demonstrate that services like these depicted in the photo, with three communication options and access to grade-level content, are just the beginning of a purposeful and outcomes-based relationship with the community. Knowing the challenges makes it almost impossible for most districts to accomplish a true language intensive environment for students who are Deaf or Hard of Hearing.  These challenges exist for many reasons – resources, a critical mass of students, and available teachers with background and training, as well as trained individuals and adult role models who are Deaf and Hard of Hearing to model naturally communication in the environment. Therefore, to provide the perfect foundation of language intensity, academic content, technology, social and executive functioning skills, The Quill Model strives to be a bridge that addresses LEAD-K in action. 

Mariann Carter, a child of deaf adults, has taken the work of two generations and brought it forth to be used in schools for the deaf, school districts, charter options and more. Visit www.quillmodel.com today to learn more about how they can help to bring about a more successful and well-rounded language-intensive education for students with hearing loss. 

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

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(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#012.  A normal hearing woman raised by deaf parents learns how to communicate more effectively and be more appreciative of different abilities.  A discussion with Mariann Carter.

Professionally, Mariann C. Carter, M.Ed., M.S., EIPA 3.9, NBCT-Retired, is the owner and lead consultant for Carter Hears! in Fort Mill, South Carolina. Carter Hears! is "an educational consulting group that focuses on children with hearing loss by supporting schools, professionals, and families with customized services." It's the agency's mission, "that all children, specifically children with hearing loss, reach their potential in academic, social, emotional, functional, and spiritual avenues through conducive learning environments." Mariann has more than 20 years of teaching experience at schools for the deaf, public schools, college-level training programs, and educational leadership. If your child or someone you know needs help, then get in touch with Carters Hears! To learn more about Carter Hears! visit www.carterhears.com or www.facebook.com/carterhears

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#011.  How to persevere through self-advocacy!  A discussion with Anna Hartge.

Anna is a young professional living in Washington, DC, with roots in Ohio and Michigan.  She considers herself a lifelong educator with experience teaching 7th grade social studies, serving within the federal government on education topics and most recently worked with college students in career services. Anna is a proud user of hearing aids and is a big believer in living a life without limits.

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#010.  An audiologist with her own hearing loss now serves children with hearing loss in the schools!  A discussion with Megan Thomas, AuD.  

Megan Thomas, AuD is currently an educational audiologist in the Richland County school district in Columbia, SC where she serves children with hearing loss and makes sure they have the services and accessibility they need in school.  She was previously with Boys Town National Research Hospital in Omaha, NE as a researcher focusing on audiological and vestibular functioning.  At Boys Town Hearing and Balance Center, clinicians and researchers integrate current audiology research findings with world-renowned expertise to provide patients with the most comprehensive hearing healthcare for both children and adults. 

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#009.  Please understand this…shouting won’t help me hear you better!  A discussion with Katherine Bouton.  

Katherine is an advocate and educator for the deaf and hard of hearing. Her recent book is “Smart Hearing: Strategies, Skills, and Resources for Living Better with Hearing Loss” (October 2018).  

She is also the author of “Shouting Won’t Help,”(2013), a memoir of losing her hearing in midlife and how it affected her, and of “Living Better with Hearing Loss” (2015).  Katherine’s books are available at Amazon.com or at your favorite independent bookstore.

Her 40-year career in journalism began at The New Yorker and concluded with 22 years at The New York Times. She traveled the world as a free-lance magazine writer as well.

Katherine is a frequent speaker on hearing loss issues and speaks to both professional and hearing loss groups. She can be reached at [email protected].

She is Vice President of the New York City Chapter of the Hearing Loss Association of America and was until recently a member of the National Board of Trustees of HLAA.

     Author: Amazon.com
     Blog: Smart Hearing

     Hearing Loss Association of America, NYC Chapter

     Terminalia, poems by Daniel Menaker, order here.

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#008.  How her research interests were shaped by her personal journey with hearing loss.  Another conversation with Brittany Lash, PhD,  Assistant Professor at the University of Dayton in the College of Arts and Sciences and Department of Communication.

See show notes for Episode #007 for her full bio.

https://udayton.edu/directory/artssciences/communication/lash-brittany.php

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#007.  How her personal journey with hearing loss helped shape a career in research.  A conversation with Brittany Lash, PhD,  Assistant Professor at the University of Dayton in the College of Arts and Sciences and Department of Communication.

Dr. Brittany Lash’s primary research interests focus on the intersections between health and interpersonal communication.  A particular passion for disability studies and the communication issues surrounding individuals with disabilities has driven much of her research as she strives to give a voice to individuals within this population.  Dr. Lash’s most recent work in this field has focused on issues of stigma and disclosure for individuals with hearing loss.  Additional research interests include the ways in which we communicate about female body image, especially that of female athletes.  She has published in several journals, including Health Communication and Communication Quarterly, and has contributed entries to the Encyclopedia of Health Communication. 

Degrees
Ph.D., Communication, University of Kentucky
M.A., Communication, University of Kentucky
B.S., Organizational Communication, Ohio University

Research Interests
Health Communication
Interpersonal Communication
Individuals with Disabilities
Stigma
Female Athletes and Body Image

https://udayton.edu/directory/artssciences/communication/lash-brittany.php

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#002.  This is the story of my journey with hearing loss.  This episode begins from the point I was identified, through meeting the love of my life, beginning a family, hearing aids and implantation, and finally the decision to leave a great career to pursue a newfound passion.

Interested in telling your story?  Do you have questions or suggestions for future guests or topics?  Email us at [email protected]!

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#003. It is truly a deafening world.  A discussion with David Owen, author of Volume Control:  Hearing in a Deafening World.  David Owen has been a staff writer for The New Yorker since 1991. Before joining The New Yorker, he was a contributing editor at The Atlantic Monthly and, prior to that, a senior writer at Harper’s. He is also a contributing editor at both Golf Digest and Popular Mechanics, and is one of The Fifty Funniest American Writers. He is the author of more than a dozen books.  All his books can be found at:  https://www.amazon.com/David-Owen/e/B001K8AJCK?ref=sr_ntt_srch_lnk_1&qid=1619378002&sr=8-1

His complete bio can be found at https://davidowen.typepad.com/david_owen/biography.html

David Owen's golf-only website is at http://www.myusualgame.com/

If you would like to tell your story or have suggestions for topics or guest, email us at [email protected]

Visit us online at www.yourlifealoud.com

Connect with us on social media!
Twitter:  http://twitter.com/livelifealoud
Facebook:  http://www.facebook.com/experiencelifealoud
Instagram:  http://www.instagram.com/experiencelifealoud
LinkedIn:  https://www.linkedin.com/in/jasonwigand/

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler

#006. A resource you need!  A discussion with Barbara Kelley, Executive Director of the Hearing Loss Association of America (HLAA)

Here’s a link to her bio. https://www.hearingloss.org/about-hlaa/our-team/staff/

They did a survey on the impact of people with hearing loss and the pandemic.  https://www.hearingloss.org/hearing-loss-pandemic-survey/. Here’s a brief video on it.

She is also on the steering group for the newly-formed Cochlear Implant International Community of Action – a global effort to raise awareness and advocacy about cochlear implants. 
HLAA resources for COVID and  individuals with hearing loss: https://www.hearingloss.org/coronavirus-covid-19-resources/
They also have great webinars which are free and open to the public: https://www.hearingloss.org/programs-events/webinars/schedule-recordings/
Virtual convention in June: https://www.hearingloss.org/programs-events/convention/

HLAA is convening a meeting for the FDA on sensorineural hearing loss. It is open and free to the public; the audience is for FDA scientists to understand the impact of hearing loss on people. We will have people with hearing loss talking about that. 

About the PFDD meetings

Patient-Focused Drug Development (PFDD) meetings were started by the Food and Drug Administration (FDA) to find a better way to hear directly from patients, their caregivers, and families. 

Over several years, the FDA conducted more than 25 PFDD meetings for a variety of diseases, to learn how the process could work (https://www.fda.gov/industry/prescription-drug-user-fee-amendments/externally-led-patient-focused-drug-development-meetings). These meetings are planned by patient advocacy organizations and are called Externally-Led Patient-Focused Drug Development meetings. To date, there have been over 40 EL-PFDD meetings. Several important outcomes of the meetings include having a recording, a transcript, and a Voice of the Patient report (https://ataxia.org/ataxiapfdd/)  . The Voice of the Patient report summarizes the meeting and gives anyone interested an overview. These reports are posted in the public domain and on FDA and patient org websites (https://pancreasfoundation.org/pfdd2020/).

Here is the registration link for the meeting on Sensorineural Hearing loss on May 25.
https://pfdd-hlaa-meeting-registration.gr8.com/?utm_medium=email&utm_source=getresponse&utm_content=HLAA+is+Hosting+a+Webinar+on+April+8+and+Convening+a+Meeting+on+May+25&utm_campaign=

(Editing and mixing by yours truly.   Go easy on me...I'll get better.  Transcription was done by automated AI software online.  There are errors.  Please forgive them.  I will continue to look at options for better transcriptions also. )

Original music by Lauren Zettler<