What is it like to live with a rare condition? In this episode, Mr Vipul Goyal gives a peek into his world, the time he was diagnosed with muscular dystrophy, how he turned his struggle into a strength and what made him contribute to the lives of people with rare conditions. He is currently a co-founder of the Indian Association of Muscular Dystrophy.See <a href="https://www.sunoindia.in/privacy-policy">sunoindia.in/privacy-policy</a> for privacy information.

What is it like to live with a rare condition? In this episode, Mr Vipul Goyal gives a peek into his world, the time he was diagnosed with muscular dystrophy, how he turned his struggle into a strength and what made him contribute to the lives of people with rare conditions. He is currently a co-founder of the Indian Association of Muscular Dystrophy. See sunoindia.in/privacy-policy for privacy information.

What is it like to live with a rare condition? In this episode, Mr Vipul Goyal gives a peek into his world, the time he was diagnosed with muscular dystrophy, how he turned his struggle into a strength and what made him contribute to the lives of people with rare conditions. He is currently a co-founder of the Indian Association of Muscular Dystrophy.See <a href="https://www.sunoindia.in/privacy-policy" rel="noopener noreferrer">sunoindia.in/privacy-policy</a> for privacy information.

Living Rare

There are more than 7,000 documented rare conditions in the world. While there is no known cure for some conditions, where there is a cure (or maintenance through medicines is possible), the cost of medication is exponentially high to bear. This podcast will focus on the status of rare conditions in India, which has been talked about very little in Indian society. It will be a one-of-its-kind attempt in India to document the gamut of challenges and achievements of people with rare conditions and will open a constructive dialogue on what can be done. This is important because an estimated 1 in 20 Indians are affected by a rare disease. The series will bring out the human face behind rare conditions – the patients, the families, caregivers, doctors, activists and geneticists working to improve life for people with rare conditions.

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Living Rare

Living Rare

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