Los Angeles-based singer/songwriter Anna Schulze was so touched by the "Living While Dying" series that she wrote "Don't You Fade Away," featured on her new album "Pickford Market."
As ALS continues to diminish his physical capacity, Bruce Kramer considers when his condition will reach a tipping point. Bruce and his wife Ev rethink Bruce's end of life directives.
The choir that he once directed visits Bruce Kramer's home at Christmas. He appreciates the frank and honest conversations he can have with friends and family as the end of his life approaches.
Bruce Kramer says ALS helped him focus on what is important in life: love and relationships. He also talks about a device he's been using that helps him breathe and the decision to enter hospice.
Bruce Kramer taught leadership ethics at the University of St. Thomas. He talked to students about how his training as a leader helped him adjust to life with ALS.
Bruce Kramer tells us that during his childhood, his mother was frequently ill and in the hospital. He says that experience helped prepare him to deal with ALS.
Bruce Kramer and his wife Ev Emerson discuss how their relationship has evolved as she has taken on the role of caregiver.
12 min
About Living While Dying: An ALS Story
From the publisher's feed
Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6,…
2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.