Major Pain

Living with Diffuse Scleroderma, Post Stem Cell Transplant


Listen Later

Shawna has been through more than most 29 year olds. She has diffuse scleroderma, also known as systemic sclerosis, a disease characterized by hardening of the skin and potentially life-threatening effects to internal organs. While this disease normally effects older individuals, Shawna started noticing symptoms at just 14 years old. The rapid progression of her disease was so concerning that doctors recommended she undergo a stem cell transplant (also known as a bone marrow transplant) to completely reset her immune system.

In episode 15 of the Major Pain podcast, Shawna takes us through her incredible journey with diffuse scleroderma. She discusses her initial diagnosis, trial and error with different medications, and the decline that prompted a stem cell transplant. She takes us through the entire transplant process, discussing the risks, preparation and recovery from this intense procedure. She also discusses being immunocompromised in a world stricken by Covid-19, most notably how her immunosuppressant drugs prevented the Covid vaccine from working in her body.

PODCAST LINKS
WEBSITE: https://majorpainpodcast.com
EMAIL: [email protected]
PATREON: https://www.patreon.com/majorpainpodcast
SUBSCRIBE: https://majorpainpodcast.com/subscribe
SPOTIFY: https://open.spotify.com/show/5NDoD07WJmICdfdRKq0TyN
APPLE PODCASTS: https://podcasts.apple.com/us/podcast/major-pain/id1562947550?mt=2&ls=1

SOCIAL MEDIA
INSTAGRAM: https://www.instagram.com/majorpainpodcast
TIKTOK: https://www.tiktok.com/@majorpainpodcast
YOUTUBE: https://www.youtube.com/@MajorPainPodcast
FACEBOOK: https://www.facebook.com/majorpainpodcast

AFFILIATE LINKS
RARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcast
AMAZON SHOP: https://www.amazon.com/shop/majorpainpodcast
NEURAHEALTH: https://www.neurahealth.co/majorpain

...more
View all episodesView all episodes
Download on the App Store

Major PainBy Jesse Mercury

  • 4.8
  • 4.8
  • 4.8
  • 4.8
  • 4.8

4.8

46 ratings


More shows like Major Pain

View all
Wait Wait... Don't Tell Me! by NPR

Wait Wait... Don't Tell Me!

38,807 Listeners

Power Health Talk with Dr. Martin Rutherford by Dr. Martin Rutherford, DC : Functional Medicine Practitioner

Power Health Talk with Dr. Martin Rutherford

42 Listeners

The Daily by The New York Times

The Daily

112,031 Listeners

Allison after NXIVM from Uncover by CBC

Allison after NXIVM from Uncover

10,350 Listeners

Healio Rheuminations by Adam J. Brown, MD

Healio Rheuminations

119 Listeners

Dateline NBC by NBC News

Dateline NBC

47,496 Listeners

ANA Investigates by American Neurological Association

ANA Investigates

10 Listeners

Deep Cover Presents: Snowball by Pushkin Industries

Deep Cover Presents: Snowball

4,548 Listeners

SmartLess by Jason Bateman, Sean Hayes, Will Arnett

SmartLess

58,014 Listeners