My daughter has Miller Dieker Syndrome , a specific type of Lissencephaly. Life is beautifully different and difficult. I offer my advice and encouragement to newly diagnosed and experienced parents of special needs children with severe disabilities. You can contact me at
[email protected] See blog post about my daughter https://blueskiesandgreenpastures.com/2021/05/13/grace-and-more-grace-miller-dieker-syndrome-lissencephaly/
8:25 Diagnosis 11:13 First seizures 14:00 Seizure triggers and constipation 16:39 Breastfeeding 18:12 Development 20:00 Hips and scoliosis 21:38 Encouragement, Join groups 23:25 Every child is different!