On this week's episode, I interview Mathilde on her experience living with Scoliosis and several other conditions.
We talk more about her life in general, how it is to be chronically ill at a young age, but also about how she tries to manage to stay positive despite it all. Because sadness, frustrations, grief etc. is a huge part of not living the life you expected.
Mathilde is a 21 years old nursing student. She lives in Copenhagen in Denmark. When she was 12 she got diagnosed with scoliosis, but throughout the years she's been getting sicker and sicker and is now struggling with multiple conditions.
She's had three spinal fusions because of her scoliosis, she's had a spine infection and is now also diagnosed with allodynia, neuropathy, Irritable bowel syndrome, Anterior cutaneous nerve entrapment syndrome, osteoporosis, dystonic cramps, and several other conditions. But most of all - all of these things mean she's suffering from chronic pain.
She created her Instagram account @ungmensyg which means “Young but sick” as a way to spread awareness and hopefully be able to support others. She's always struggled to fit in and find her place, because a life with chronic pain is way different from the one a regular young student lives.
I hope you enjoy this very interesting story and you can find her instagram page in the link below:
Instagram: https://www.instagram.com/ungmensyg